Friday, January 12, 2007

So I'm joining the ranks of the mall walkers...

...Actually I'm not. I think I exist only to irritate them as they stride past me as I limp along on my lymphedema(ic?) leg pushing the stroller, waaay too close to my body space for my liking, well practically barging me out of the way, if you like.

I mean, yes, exercise is great, which is why Jamie and I plan to head off to the mall a couple of times a week for a slow crawl around, I need it for my bones as the 'roids lay waste to them (plus I could use trying to get rid of some of this extra 'roid weight). But why do you have to be mean about it? You should see it. These people take it very, very seriously. C'mon people, it's the crappy little local mall, you're taking a walk, not training for the London Marathon!

Still it gives me some amusement, so I shouldn't complain. It's an aggressive sport people! NOT for the fainthearted.

So we started our 'walks' on Monday. I honestly thought it would start making me feel better. I should have known better.

We got home around 11am and I fed Jamie, took my meds and fed myself. Then I spent the rest of the day vomiting.

I have to be honest here, I've been feeling sick for about a month, I guess. I touched on it in my last entry, but it had at that time got to the point where I couldn't take any more. I'd have "good" days and the 'roids caused me to push myself further than I should have. But the swelling just continued to increase and lasted for so long that I thought it was just a permanent side-effect of the drugs.

After my CT scan, the swelling was even worse and I got diarreah that went on for days. I sort of expect that after all the contrast and the enema, so just lived with it. But by Monday, I was so sick that I wasn't able to keep my meds down and that's getting dangerous.

I began to have seizure activity along with the vomiting, just like before when my brain lesions were found. I was so scared. Jim came home from work, took one look at me and called one of the doctors who told him to get me to the ER asap. So off we went.

They did a brain CT, hydrated me, gave me IV Zofran and Decadron (the 'roid) and did bloodwork. I have some sort of gastric infection, which is what was making me swell, causing the diarreah, etc. My Dilantin (the med that controls seizures) levels were very low, hence the siezure activity. So they had me take a double dose that night to be on the safe side.

I had the headache from Hell the next morning, probably from cutting down on the 'roids so drastically because I was too sick to take them. I also had my check up with the doctor scheduled, so Jim took the day off from work and we went to that. He was pretty concerned that the ER hadn't done the CT with contrast, so sent me for another one with contrast (yay) as he was concerned about bleeding in my brain. His nurse said he'd call if there was anything to worry about and I haven't heard, so no news is good news.

Speaking of scans, this is what they did to me last week.

The pictures don't really show the damage as it really is, it looks much worse, but just an idea.


So... There we have the latest episode in the saga which shall now be called As The Stomach Churns... Don't touch that dial!

Nothing much else happening aside from vomit, seizures and plenty of naps. I don't think the mall walking will be taking place for a while (probably just as well, I don't think I'm up to contact sports, heh).

Once again I want to thank you all for your comments and e-mails, I don't know how I ever got to 'meet' such amazing people, but there you are! And you put me to shame with your writing skills! Thank you so much for your support and for taking the time to put your feelings into words. It means so much to me...

I'll work on a better entry when I'm feeling a bit better, thanks for sticking with me, guys!


Anonymous Bonnie Leas said...

Hello My dear Heather

How I like that name, brings to mind the purple heather I hear about from my sister and how strong that flower plant is, and grows sometimes in very inhospitable places.

I have visited the 'CT's from Hell' before, but you describe them so well. Had to have two in less than a week, and the goofs used the SAME vein as before (diff goofs) NEVER AGAIN says I. So far no CT' for me but have had the MRI and am due for a second one next month. At least do not have to drink goop, but yep bot a smaller injection than what I remembered from CT.

Mall walking. OLD folks do that here, they have routes and times and I bet races and then a restaurant opens offers seniors specials for breakfast, and they gobble up double eggs tons of bacon, pancakes, toast and gallons of coffee. (sort of defeats their purpose) they stride in and waddle out just like the rest of us hahah.

Keep on writing, this blog is your diary, and no one cept yourself can put into words your feelings and fears and joys.

I for one am soooo proud to 'know you'

Bonnie Lea

9:17 AM  
Anonymous Anonymous said...

hey you're showing us alittle cleavage girl! w00t! You tee looks fun too!
Sorry for the owies tho :(
{{{{{{{hugs & loves always}}}}}}


9:58 AM  
Anonymous Anonymous said...

Heather you always make me smile. I have also joined the 'mall walkers' and thought I was imagining how agressive my fellow walkers can be! What's really annoying is the group that sits in the food court watching and commenting on walkers that are not part of their little clique.

10:00 AM  
Blogger Carver said...

Dear Heather,

I knew you were brave but now I'm astounded to learn you are even MALL brave. Anyone who can deal with mall walking, with the baby no less, is beyond belief. I do almost anything to avoid the malls although it is a great way to keep walking in bad weather. You hold your ground, maybe trip a few people, perhaps wear a "make my day" T-shirt. Okay, I'm being silly. I'm sorry you've been feeling so sick and had to go to ER. I'm hoping against hope that you will get a much deserved break from all the bad stuff. My thoughts are as ever with you.

Love, Carver

6:02 PM  
Blogger King (Kathie) said...


Thanks for the update. I must admit I was getting quite concerned. You have had one rough week!! Well, it's been longer than that, I know, but this one sure hasn't been pleasant.

I am amazed at what you can push yourself to do. I babysit two afternoons a week for my 10 month old grand daughter and I am worn out (very happy) when I am done. You seem to handle Jamie with ease (and I know you have 3 others).

I wish there was just something that I could do for you and/or your family, Heather. I feel so helpless knowing the battle you are in and not being able to do something!

I really, really hope that you start feeling better soon.

Stay Strong

Kathie (King)

7:17 PM  
Blogger Sarah said...

silly woman, you're entry was great and, as always, honest. your humour is always there, but even if it weren't it is your honesty and candidness that keep people reading, and of course the desire to cheering you on!

i've been thinking of you constantly over the holidays and everyday i say to myself, i want to call heather, but i've been so damn tired and asocial for a few weeks now (since xmas, when was that anyway???)that i don't wanna call until i feel like "myself", ya know? i know you know. stoopid. also i don't wanna bug if you feel crappy so you can always give me a ring! i just don't answer if i feel crappy (80% of the time lately!)

sounds like you've had a "rough go of it" as the brits would say but i'm hoping all the distress was just due to the tummy infection and the throwing up of the meds and roids. makes so much sense to me!

keep getting your energy up and one day only when you are 100% ready, i say you venture to that mall again, if only for half the time, then treat yourself to a non-fat decaf latte or something you really love because you deserve it!

much love

10:29 PM  
Anonymous Shelley said...


I'm sorry you got even sicker and how scary to have more seizures! I'm glad the ER fixed you up, I can't imagine how scared Jim must have been seeing you go through that. I hope you're resting and taking good care of yourself and letting the family help until you feel better at least, we know how you are. I really wish there was something I could do for you.....

Don't even talk to me about the mall walkers! It's getting so you can't even go shopping anymore without a bunch of geriatrics hassling you [gangsta style?LOL]. More than once I've considered taking out a hit on a group of them, mafia style [take that]. But being the wuss I am I instead settled for a large unfriendly purse and I know how to use it!



ps, hope you manage to enjoy your "anniversary" even though you're feeling rough :x

6:41 AM  
Anonymous Anonymous said...

You need one of those "Vote From The Rooftops" tees to wear to the mall! *laughing*

I was at our local mall the other day, which is unusual for me during the day ad was surprised at how badly the walkers have taken it over. I mentioned it to someone in mall services and told them that these people aren't actually bying anything and maybe shouldn't be allowed to run rampant throughout the place. I'm sure it fell on deaf ears.....ill mannered hyperactive geriatrics have rights too.

Sorry you've been feeling so sick, that must suck on top of everything else you're dealing with.

You're in my thoughts,


5:32 AM  
Blogger ruth said...

Damn just wrote lots then lost it trying to sign in.

Wanted to thank you for your kind post to me after I screwed up Christmas. I'm happy to see you made a much better job of it than I did! You know I'd like to think that I messed up mine so bad and that in some way helped make yours perfect. That would be worth it. Though I imagine you being so darn courageous probably had more to do with it! Well done hunny you should be very proud of yourself. I wish I could be so anti self pity like you. I'm learning though ;o)

I hope your scans come back good, I'm reluctantly going away for a week this Friday. My family seem to think I need a break lol. I'll be thinking of you as always.

Peace and love

Ruth xxx

7:27 AM  
Anonymous Anonymous said...

Heather, I'm sorry to hear that you've been so ill. There's January for you. Like you need anything else to cope with, right?

But I've got to say, your entry had me spitting coffee in my keyboard.

"Zombies III - The Mall Walkers!"

"As The Stomach Churns"

I'm still LMFAO

Don't ever lose that sense of humor. That and your courage puts people like me (who need it) in our place very nicely. Thank you. I was grumbling about paying the bills and just groaning on in general about inconsequential bullshit last night. Get back online this morning, check your blog (my first stop) and get this humorous bitch-slap from you that I sorely needed.

Feel better soon!


7:37 AM  
Anonymous Anonymous said...

I thought I was the only one who found the mall walkers a bit strange.....
I agree with the above comment that the Zombies picture was hysterical. Now I'm picturing rabid groups of old people in leisure clothes and sparkling new sneakers wandering the mall looking for victims to suck out their brains.
I guess we'd better start working on our headshots.....laughing here.
Sorry you've been so unwell, there's been a lot of crap going round, I was worshipping the porcelain god myself the other day. Of course I complained about it because I'm an idiot. Reading about your ER experience and just how serious a simple stomach bug can be for you helped put things in perspective there.
I like the perspective your blog brings to my life. It's something a lot of people could use more of.

Feel better soon.


8:45 AM  
Anonymous Anonymous said...

As the Stomach Churns....roflmao!

Show the mall walkers your battle scars, they'll back off!

Still anonymous as I still can't remember my damn password.

9:46 AM  
Anonymous Anonymous said...

Mall walking as a contact sport. ROFL

Feel better soon, lady!


11:39 AM  

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